People ask me all the time how living with porphyria affects my day-to-day. This site is a safe place for me to share my story, my growth, and my setbacks, as I live a life in caution. I live with a disease for which there is no cure, and there exists a high degree of daily maintenance to be stable. I hope porphies and others with chronic health challenges, both mental and physical, can relate and derive hope from my real talk.
I believe in the power of gratitude practice and giving high fives. Sending a card is an easy way to be intentional, gracious and impact others. I invite you to discover the healing power of thank you cards.